National Fibromyalgia Partnership, Inc. • www.fmpartnership.org

 

Resources For Young People With Fibromyalgia

 

 

Selected Research Abstracts

download PDF file (24 pp.)

 

Websites

http://home.bluecrab.org/~health  For Parents of Sick and Worn-out Children. Covers fibromyalgia, CFS/CFIDS, Lyme disease, and several other chronic conditions.

http://www.pediatricnetwork.org  New online website for fibromyalgia, CFS/CFIDS, and orthostatic intolerance. Offers online newsletter.

http://mwilliamson.com/children.htm  Excerpt from author Miryam Williamson's book, Fibromyalgia: A Comprehensive Approach

http://members.aol.com/fibroworld/juvFM1.htm  Juvenile Fibromyalgia and Chronic Fatigue Syndrome--offers research abstracts

www.geocities.com/HotSprings/Spa/3579  Website of a young person with fibromyalgia and CFS/CFIDS

www.abilityinfo.com/category/student.html  Abilityinfo.com--National and International Student Resources

http://www.disabledstudents.org  National Disabled Students Union--a national, cross-disability, student organization dedicated to social justice

www.esmerel.org/misc/children.htm  Esmerel's --a collection of disability sites for children

http://www.coveringkids.org  Covering Kids & Families--a national program

www.finaid.org/otheraid/disabled.phtml  Information about scholarships and fellowships (including loans, scholarships, military aid, and savings) for students with disabilities

 http://www.nichcy.org  NICHY--National Information Center For Children And Youth With Disabilities: An information clearinghouse which provides disability information and has extensive and easy-to-understand resource listings.

 

Books On FM-Related Conditions

A Parents' Guide to CFIDS: How To Be An Advocate For Your Child with Chronic Fatigue Immune Dysfunction Syndrome, by David S. Bell, MD, FAAP; Mary Z. Robinson, MDEd; Jean Pollard, AS; Tom Robinson, MS, CAS; and Bonnie Floyd, MA. Binghamton, NY: The Haworth Medical Press, 1999. Phone: (800) HAWORTH. Although written for the parents of children with CFIDS, this book has a great deal of pertinent information for fibromyalgia, too. Includes chapters on family life, social life, coping, and relationships with doctors, as well as an excellent section on school and education. Also contains a comprehensive resource section in the back with the names/addresses of organizations to contact and explanations of the legislation affecting sick and disabled children.

Pediatric Chronic Fatigue Syndrome, edited by Kenny L. De Meirleir, MD, PhD—Brussels, Belgium; Neil R. McGregor, BDS, MDSc, PhD—Victoria, Australia); and Elke L.S. Van Hoof, PhD, Clin Psych—Brussels, Belgium (Haworth Press, 2006). This valuable new resource considers the medical and psychosocial impact that chronic fatigue syndrome (CFS) has on children and adolescents. It also provides criteria for the first-time diagnosis of pediatric CFS as developed by the International Association of Chronic Fatigue Syndrome Pediatric Case Definition Working Group. Treatment guidelines are also offered. [Offered in $78 hardbound and $36 softbound editions. Order online from HaworthPress.com, or phone (800) 429-6784.]